ISSN 1016-5169 | E-ISSN 1308-4488
Patient Perception, Knowledge and Adaptation in the Management of Heart Failure. A Multicenter, Cross-Sectional, Observational, Questionnaire-Based Study: ADAPTATION HF [Turk Kardiyol Dern Ars]
Turk Kardiyol Dern Ars. Ahead of Print: TKDA-53574 | DOI: 10.5543/tkda.2023.53574

Patient Perception, Knowledge and Adaptation in the Management of Heart Failure. A Multicenter, Cross-Sectional, Observational, Questionnaire-Based Study: ADAPTATION HF

Selda Murat1, Yüksel Çavuşoğlu1, Mehmet Birhan Yılmaz2, Özlem Yıldırımtürk3, Nedret Ülvan4, Ahmet Çelik5, Murathan Küçük6, Barış Kılıçaslan7, Sanem Nalbantgil8, Zerrin Yiğit9, Hakan Altay10
1Department of Cardiology, Eskişehir Osmangazi University Faculty of Medicine, Eskişehir, Türkiye
2Department of Cardiology, Dokuz Eylul University Faculty of Medicine, Izmir, Türkiye
3Department of Cardiology, University of Health Sciences, Dr. Siyami Ersek Thoracic and Cardiovascular Surgery Training and Research Hospital, Istanbul, Türkiye
4Department of Cardiology, Health Sciences University, Ankara City Hospital, Ankara, Türkiye
5Department of Cardiology, Mersin University Faculty of Medicine, Mersin, Türkiye
6Department of Cardiology, Akdeniz University, Antalya, Türkiye
7Clinic of Cardiology, Tepecik Training and Research Hospital, İzmir, Türkiye
8Department of Cardiology, Ege University Faculty of Medicine, Izmir, Türkiye
9Istanbul University-Cerrahpasa University, Institute of Cardiology, Istanbul, Türkiye
10Department of Cardiology, Baskent University Faculty of Medicine, Istanbul, Türkiye

The aim of this study is to reveal the perception levels of heart failure (HF) patients about the disease, their adaptation to the disease process, their compliance with the treatment, and their knowledge and thoughts about the disease from the patient's perspective.

Patients with a diagnosis of HF for at least 6 months who applied to the cardiology clinics of 10 different centers were included in this cross-sectional, multicenter and questionnaire-based study. A questionnaire consisting of sections that included demographic information, evaluation of the patient's symptoms, knowledge and experience of clinical follow-up, knowledge of HF, compliance and awareness of treatment was applied to the patients.

504 patients with a mean age of 59.8±14.9 years (M/F: 360/144, 71.4%/28.6%) were included in the study. 61.2% of the patients stated that they knew about HF disease before. Most of the patients knew that the complaints of shortness of breath, fatigue and palpitation could develop due to HF (95.4%; 92.7%; 89.7%, respectively). The patients reported that they were mostly worried about not being able to provide their own self-care without the support of another person (67.5%). While the majority of patients (37.6%) thought that the worst disease was to have a cerebrovascular disease; only 10.9% stated that HF was the worst disease. While 98.8% of the patients stated that they used HF drugs regularly, a relatively large part of the patients did not know that the drugs were effective on kidney functions (68.5%) and blood pressure (76.9%). In the daily practice of the patients, the rate of weight follow-up was 35.5%, the rate of blood pressure monitoring was 26.9%, and the rate of patients who exercised was 27%. Among the patients, 73.3% said that they pay attention to the amount of salt they take with diet, and 33.5% have a completely salt-free diet. There was no difference between the groups with low and high knowledge scores in terms of Pittsburgh Sleep Quality Index (p>0.005). The knowledge level score was significantly higher in patients with previous myocardial infarction (p=0.002).

Most of the HF patients participating in the study are aware of the signs and symptoms of HF, follow the recommendations of their physicians, and use drugs regularly. These patients should have more information about blood pressure monitoring, weight monitoring, diet and sodium restriction, exercise, which are included in the non-pharmacological part of treatment management.

Keywords: Adaptation, heart failure, perception

How to cite this article

Corresponding Author: Yüksel Çavuşoğlu, Türkiye
Manuscript Language: English

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